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Exploring the role of health-related quality of life measures in predictive modelling for oncology: a systematic review
Exploring the role of health-related quality of life measures in predictive modelling for oncology: a systematic review
Health related quality of life (HRQoL) is increasingly assessed in oncology research and routine care, which has led to th...
The influence of mode of remote delivery on health-related quality of life outcome measures in British Sign Language: a mixed methods pilot randomised crossover trial
The influence of mode of remote delivery on health-related quality of life outcome measures in British Sign Language: a mixed methods pilot randomised crossover trial
Little is known about the efficacy of remotely delivered outcome measures (psychological/health-related assessments) in a ...
In varietate concordia – cluster analysis of EQ-5D-5L value sets in European Union countries
In varietate concordia – cluster analysis of EQ-5D-5L value sets in European Union countries
The transferability of health policies in the European Union (EU) faces challenges due to economic, political, and healthc...
Investigating item response theory model performance in the context of evaluating clinical outcome assessments in clinical trials
Investigating item response theory model performance in the context of evaluating clinical outcome assessments in clinical trials
Item response theory (IRT) models are an increasingly popular method choice for evaluating clinical outcome assessments (C...
Depression in patients with anorectal fistulas and anal fissures: a propensity score-matched cohort study
Depression in patients with anorectal fistulas and anal fissures: a propensity score-matched cohort study
Anal fissures and anorectal fistulas are diseases often associated with significant pain and prolonged discomfort, resulti...
Differential item functioning between English, German, and Spanish PROMIS® physical function ceiling items
Differential item functioning between English, German, and Spanish PROMIS® physical function ceiling items
We investigated the validity of the German and Spanish translations of 35 new high functioning items added to the Patient ...
Association between cardiovascular health and perceived quality of life in ethnically diverse adults: insights from the Community of Mine study using the American Heart Association’s Life’s Simple 7
Association between cardiovascular health and perceived quality of life in ethnically diverse adults: insights from the Community of Mine study using the American Heart Association’s Life’s Simple 7
The association between cardiovascular health (CVH) with perceived quality of life (PQoL) and variations by sex and Hispan...
Content and face validity of preference-based quality of life instruments in indigenous youth experiencing mental health problems: a qualitative study
Content and face validity of preference-based quality of life instruments in indigenous youth experiencing mental health problems: a qualitative study
Mainstream preference-based quality of life (QoL) measures have been traditionally based on Western principles of health. ...
Mapping and comparing the quality of life outcomes in childhood and adolescent and young adult cancer survivors: an umbrella review and future directions
Mapping and comparing the quality of life outcomes in childhood and adolescent and young adult cancer survivors: an umbrella review and future directions
A cancer diagnosis early in life can leave a legacy in terms of compromised Quality of Life (QoL). There is a lack of clar...
Quality of life measures for people following stroke: a structured content review
Quality of life measures for people following stroke: a structured content review
Patient Reported Outcome Measures (PROMs) are used widely to collect patient perspectives on their Health-Related Quality ...
Clarifying thresholds for defining levels of physical function and pain interference using bookmarking in orthopaedics
Clarifying thresholds for defining levels of physical function and pain interference using bookmarking in orthopaedics
Bookmarking is a qualitative method used to assign descriptive labels to ranges of patient-reported outcome (PROM) scores....
Health state utilities associated with invasive pneumococcal disease, pneumonia, and recurrent acute otitis media in young children
Health state utilities associated with invasive pneumococcal disease, pneumonia, and recurrent acute otitis media in young children
Cost-utility analyses examining the value of new vaccines for pneumococcal disease will require health state utilities as ...
“I think her life got so much better”: parents’ perceptions of children’s quality of life following treatment of tracheomalacia with aortopexy
“I think her life got so much better”: parents’ perceptions of children’s quality of life following treatment of tracheomalacia with aortopexy
Aortopexy is a procedure to reduce pressure on the trachea in children with severe tracheomalacia. Health-related quality ...
Long‑term physical and mental Health-Related Quality of Life in Italian patients post COVID-19 hospitalisation
Long‑term physical and mental Health-Related Quality of Life in Italian patients post COVID-19 hospitalisation
Prior evidence suggests that patients’ Health Related Quality of Life (HRQoL) worsens after COVID-19. This study aim...
Bayesian item response theory to estimate power in clinical trials with patient-reported outcomes as endpoints
Bayesian item response theory to estimate power in clinical trials with patient-reported outcomes as endpoints
Patient-Reported Outcomes (PROs) are widely used in clinical trials, epidemiological research, quality of life (QOL) studi...
Translation, cultural adaptation, and validation of the Chinese standardized outcomes in nephrology–hemodialysis fatigue (C-SONG–HD fatigue) scale: a study of Chinese patients undergoing hemodialysis
Translation, cultural adaptation, and validation of the Chinese standardized outcomes in nephrology–hemodialysis fatigue (C-SONG–HD fatigue) scale: a study of Chinese patients undergoing hemodialysis
This study aimed to translate and culturally adapt the standardized outcomes in nephrology–hemodialysis fatigue (SON...
What does better look like in individuals with severe neurodevelopmental impairments? A qualitative descriptive study on SCN2A-related developmental and epileptic encephalopathy
What does better look like in individuals with severe neurodevelopmental impairments? A qualitative descriptive study on SCN2A-related developmental and epileptic encephalopathy
There are limited psychometric data on outcome measures for children with Developmental Epileptic Encephalopathies (DEEs),...
Health-related quality of life of people with heart failure in low- and middle-income countries: a systematic review and meta-analysis
Health-related quality of life of people with heart failure in low- and middle-income countries: a systematic review and meta-analysis
Heart failure is a global health concern and associated with poor health-related quality of life and increased mortality. ...
Using parameter perturbation to facilitate transparency in measure development
Using parameter perturbation to facilitate transparency in measure development
This work was supported by Environmental influences on Child Health Outcomes (ECHO) program, Office of The Director, Natio...
Influence of body mass index on health complains and life satisfaction
Influence of body mass index on health complains and life satisfaction
This research work investigates the influence of children’s weight status on well-being and school context in a samp...
Using a multi-stakeholder co-design process to develop a health service organisation-wide patient reported outcome measure collection system
Using a multi-stakeholder co-design process to develop a health service organisation-wide patient reported outcome measure collection system
Limited examples exist of successful Patient Reported Outcome Measure (PROM) implementation across an entire healthcare or...
Patient quality of life and caregiver experiences in ovarian cancer: How are they related?
Patient quality of life and caregiver experiences in ovarian cancer: How are they related?
Patients with ovarian cancer and their spousal caregivers report similarities in health-related quality of life (HRQoL) an...
Health outcomes before and during the COVID-19 pandemic in caregivers of service members and veterans with traumatic brain injury
Health outcomes before and during the COVID-19 pandemic in caregivers of service members and veterans with traumatic brain injury
To examine change in health-related quality of life (HRQOL) during the COVID-19 pandemic in caregivers of service members/...
Supportive care needs in Australian melanoma patients and caregivers: results from a quantitative cross-sectional survey
Supportive care needs in Australian melanoma patients and caregivers: results from a quantitative cross-sectional survey
This study aimed to investigate the supportive care needs of Australian melanoma patients and their caregivers to form the...
The early years: hirschsprung disease and health-related quality of life
The early years: hirschsprung disease and health-related quality of life
Chronic diseases are notorious in the way that they interfere with many aspects of a child’s development, and this h...
The Patient Generated Index (PGI) as an early-warning system for predicting brain health challenges: a prospective cohort study for people living with Human Immunodeficiency Virus (HIV)
The Patient Generated Index (PGI) as an early-warning system for predicting brain health challenges: a prospective cohort study for people living with Human Immunodeficiency Virus (HIV)
In research people are often asked to fill out questionnaires about their health and functioning and some of the questions...
Estimating the disutility of relapse in relapsing–remitting and secondary progressive multiple sclerosis using the EQ-5D-5L, AQoL-8D, EQ-5D-5L-psychosocial, and SF-6D: implications for health economic evaluation models
Estimating the disutility of relapse in relapsing–remitting and secondary progressive multiple sclerosis using the EQ-5D-5L, AQoL-8D, EQ-5D-5L-psychosocial, and SF-6D: implications for health economic evaluation models
Relapses are an important clinical feature of multiple sclerosis (MS) that result in temporary negative changes in quality...
Development and initial psychometric evaluation of a COVID-related psychosocial experiences questionnaire for cancer survivors
Development and initial psychometric evaluation of a COVID-related psychosocial experiences questionnaire for cancer survivors
Cancer survivors are at elevated risk of psychological problems related to COVID-19, yet no published measure adequately a...
Living well while providing support: validation of LTCQ-Carer for assessing informal carers’ quality of life
Living well while providing support: validation of LTCQ-Carer for assessing informal carers’ quality of life
Despite international policies to support the health and wellbeing of informal (family) caregivers, there is no consensus ...
Estimating meaningful change for The Impact of Weight on Self-Perception (IW-SP) questionnaire among people with type 2 diabetes
Estimating meaningful change for The Impact of Weight on Self-Perception (IW-SP) questionnaire among people with type 2 diabetes
The Impact of Weight on Self-perception Questionnaire (IW-SP) is a three-item patient-reported outcome measure (PROM) inst...
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